Kaleb John Thomas Ogden

Kaleb John-Thomas Ogden was born on September 25, 2008, at 7lbs. 6 oz. Our families immediately fell in love with him. Despite a little rough start with Positional Feet, an operation for a Hydrocel and the never ending colds from Day Care, Kaleb was active and appeared healthy up until around six months. His smile and giggles are heartwarming.

Shortly after that time Kaleb lost interest in toys, developed some jerky eye movements, began stacking his head backwards, could no longer sit, and was diagnosed with Hypotonia and Developmental Delay. For the next six months we would visit numerous specialists, & conduct weekly Physical (PT) and Occupational Therapy (OT) sessions.

On Feb. 23, 2010, an inconspicuous eye exam, recommended by our PT, would change our lives forever. The Ophthalmologist observed “cherry red spots” in Kaleb’s eyes, which is the tell-tale sign for Tay Sachs / Sandhoff’s Disease. Three weeks later Sandhoff's Disease was confirmed. To date, there is no cure and the life expectancy is between three to five years. We understand that Kaleb's life is in God's hands. We are prepared and willing to do whatever it takes to improve Kaleb's quality of life and search for a cure. Please follow our progress and pray for Kaleb's cure!

Kaleb passed away Wednesday morning at home in the arms of his parents. In lieu of flowers and cards the family requests donations be made to Kaleb's Cure at any Orlando Federal Credit Union or by visiting ogdenfamily.weebly.com