Bertrand "Buddy" Thomas Might

9 décembre 200723 octobre 2020

Bertrand ‘Buddy’ Thomas Might left us with grace and dignity on Friday, October 23rd at the age of 12, surrounded by his loving parents.

Bertrand was born in Scottsdale, Arizona on December 9, 2007 to Matthew Might and Cristina Casanova Might. They moved to Salt Lake City, Utah when he was 8 months old, and lived there until moving to Birmingham, Alabama in 2017. As the first patient diagnosed with the rare disease N-glycanase (NGLY1) deficiency and as a youth advocate for rare disease, Bertrand leaves a rich legacy of legislative, digital, communal, medical and scientific achievements. In the hearts of those who knew him, he has left an even greater legacy of love.

He will be remembered as a boy who loved to smile and make others laugh; the world’s best daddy to his pet fish; a lover of music, lights, and Elmo; someone skilled at snuggling and cheering others up; and the proudest older brother to his younger siblings Victoria Elizabeth Might (age 9) and Winston John Might (age 6).

Bertrand was a student at Mountain Brook Elementary School where he excelled at making friends and touching hearts.

Buddy is survived by his family, many friends, and a global community who loved him.

His life will be celebrated at St. Luke’s Episcopal Church in Mountain Brook on All Saints Day, Sunday, November 1, 2020 at 3:00 pm.

More information will be available at http://bertrand.might.net/

“The good life is one inspired by love and guided by knowledge.” --Bertrand Russell


  • Celebration of Life Memorial Service

    dimanche, 1 novembre , 2020


Bertrand "Buddy" Thomas Might


Bruce and Francie Kochanek

1 novembre , 2020

We are so saddened by the loss of your beloved Bertrand. We pray God gives your familly the courage and the guidance through this difficult time. The measure of a human is the impact they have on the world. Bertrand's loving and joyous character is forever engraved in our hearts. God Bless your family for the best life you gave Bertrand, his spirit will be a part of our family always. The memorial service was inspirational and very touching experience. We are so thankful to have known Bertrand. Christina, Matt and the Might familly we are all inspired by your devotion and love. When we think of Bertrand, an overwhelming and happy glow appears . . . as I am sure everyone who knew Bertram shares.
God Bless the Might family and God please comfort Bertrand's precious soul. We love you and miss you Bertrand and love the Might family. The Kochaneks, Bruce, Victoria and Francie

Deepthi Rajeev

1 novembre , 2020

We are all watching the live stream of Bertrand's celebration and thinking of you all with mixed feelings of sadness, gratitude, and inspiration.
Love to you all!
Rajeev, Deepthi, Shurik, Anushka

Greg Enns

1 novembre , 2020

Dear Matt, Cristina and family,
I am so sorry to hear about Bertrand's passing. He has been and will continue to be an inspiration to me and so many others who care for children with rare disorders.
With heartfelt condolences,
Greg Enns

Rhonda Ogle

1 novembre , 2020

Matt & Cristina,
What an incredible child! I cannot imagine your loss, but please know you have a neighbor praying for you and your family at this difficult time. You were blessed with an amazing child, and have more than blessed others through your research and tenacity to help find a cure for this disease.

Lynne Wolfe

1 novembre , 2020

Dear Cristina and Matt,
There are just no words for this loss in your family and the world. I will always remember Bertrand's smile and resilience. For most of his life he took whatever was thrown at him and kept on going. He was an incredible 1st NGLY1-CDDG patient in the CDG natural History study at NIH. We learned so much from him as he blazed the path for so many other NGLY1-CDDG patients. Those early efforts have contributed to a huge research effort around the world to understand this disorder, work towards therapeutics, and ultimately find a cure. I hope your family takes great comfort from that even through this sadness. Bertrand will forever be in my heart.

Sandra Sermone

31 octobre , 2020

Both of our boys were diagnosed at Duke a month apart, at the same age. Later we met, not by luck, but by the connection that we were both trying to help our boys. Back then, you shared advise on how I can best take care of my rare disease community, and over time you guided us to a possible treatment. If it were not for your sweet son, non of this would have happened, and it is because of him we may have a treatment that will help thousands of children. ❤️ Forever grateful.
Sandra, Rich, Sophia, Rocco and Tony “Superman” Sermone

cathy cherry

31 octobre , 2020

Tom and I were blessed to have Cristina, Matt and Bertrand as our neighbors in SLC.
We watched their journey to find a diagnosis and hopefully treatments for Bertrand and the other children affected by the rare disease that they were able to identify.
Ours hearts are breaking for you.

Terri coppa

31 octobre , 2020

Christina and Matt, I want to thank you for giving me the opportunity to know your family and being able to help care for Bertrand on the bus I loved the field trips we took, every day was special we miss him so much, the bus has never been the same since you guys moved. Bertrand has blessed us with his sweet spirit. We love you guys.

Carolyn Bone

30 octobre , 2020

Although I only met Bertrand (and, yes, he was called Bertrand then) I remember him as such a vibrant child, curious about and interested in every toy or book I offered him during our “testing”session. It was such a pleasure to see him several more times while visiting his preschool classroom. Thank you for sharing him.
He will be mossed by many.

Lauren Merrill

30 octobre , 2020

Bertrand was such a sweet light at MBE! He will be greatly missed!