OBITUARY

Mayah Marie Mazurkiewicz

June 20, 2018November 13, 2018
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On Tuesday November 13th 2018 our beautiful 4 month old daughter Mayah Marie Mazurkiewicz gained her wings while being surrounded by loved ones after a long hard fought battle with Congentinal Heart Disease.

On Wednesday June 20th 2018 at 3:55 am. Mayah Marie was born at Rush University Medical Center, weighing 7lb 15 oz to her parents Alejandra Rodarte and Alex Mazurkiewicz. Hours after being born Mayah was quickly transferred to Christ Advocate Childrens Hospital in Oak Lawn, where she immediately had to have open heart surgery to survive. After long hours of being in surgery at just a day old her surgery was successful thanks to Dr. Ilbawi and his staff. Mayah remained her whole 4 months of life in a hospital bed alongside her parents. Mayah was so loved and will always be remembered as a beautiful, strong warrior. Mayah was not only unique because of her condition but she was also very tough and spirited. It was constantly felt in the PSHU and around everyone who knew and loved her. Mayah overcame major obstacles in her life that many of us wouldn’t go through in a life time. Mayah fought every single second, minute, and day of her life. She taught her parents that life is precious and that anything is possible even through the darkest and brightest days. Even though Mayah is not with us anymore she will always live in our hearts. We know she's gained a brand new heart next to God and will always look down on us.

We want to thank our family and friends for everything they have done for Mayah and for us, from the simplest texts,phone call or visits. We are truly grateful to have such a wonderful support system. We couldn't have done it without God and all of you. God bless you.

P.S to My Princess Warrior from Dad.

I will always keep my promise I made to you when you were born. I promised you that we would watch every Steelers game and I know this time it will be harder to watch the games. I know deep down you will be in my heart, watching the game with me in heaven. Daddy will always love you and will never forget the good times we had.

From Mom

To my Mayah Marie my PRIDE and JOY if I could do it all over again I would do it in a heart beat. Not a single second was wasted next to you. I will miss those beautiful stunning eyes of yours, the way you looked at me and all the moments we shared together. You had such an amazing over powering strength that kept me going. You taught me that life is so precious.You will always live in my heart.

Services

  • Visitation Sunday, November 18, 2018
  • Chapel service Monday, November 19, 2018
  • Interment Monday, November 19, 2018
REMEMBERING

Mayah Marie Mazurkiewicz

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Olivia Mazurkiewicz

January 29, 2019

Since finding out your mom would be getting induced on June 18th we waited for your arrival. Pretty sure I drove your mom nuts asking for updates, we just couldn't wait to meet you. Finally waking up on June 20th we found out you were here. We couldn't get ready fast enough to come see you. We had already envisioned the play dates with your cousin Darek, the family vacations and of course you and Darek fighting over toys. We couldn't help but smile just waiting for all those memories to be made right after you were finally out of the hospital and all of this was behind us. We were there by your side during the first surgery waiting, hoping and praying, inside knowing everything would be alright. Everytime we came to visit you we saw your strength and we were overjoyed to hear the milestones you made! You were strong and a fighter just like your mom, one of the strongest women I know. I loved being able to do crafts with you it truly felt like an honor. Every visit your mom and I tried to figure out who you looked like more, we still don't know. Every so often we would ask when your finally going home, we couldn't wait to hold you. I finally got to hold you not the way I wanted to, that day you took a little piece of me with you. You left such a big imprint in our hearts, and made such a big impact on our lives. You showed us that family is the most important and who we can count on. You will forever live on Mayah Marie. We will always talk about you and share your photos with your cousins. You will forever be our beautiful little niece and we will carry you in our hearts. One day we will meet again.

With love,
Uncle Mike, Aunt Olivia and Cousin Darek

Mayah and Daddy just after being transported to Advocate Children's Hospital, June 20th 2018

Keanae, Jesela, Ella, & Jesch Reyes

November 16, 2018

Alejandra we send you & your family our love and heartfelt prayers.

We know Mayah was surrounded with nothing but love because you gave so much care to our kids, who adored you! We hope the infinite love & joy Mayah brought to your lives strengthens you with each day. Your little angel & family will remain in our prayers.

❤️ The Reyes Family (Keanae, Jesela, Ella, & Jesch)

FROM THE FAMILY
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MOMMY TO BE. A Month in a half before meeting baby Mayah.

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Mommy and grandparents

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Daddy, great grandma, and Mommy.

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MOMMY TO BE. A Month in a half before meeting baby Mayah.

FROM THE FAMILY

Mommy and grandparents

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Daddy, great grandma, and Mommy.

FROM THE FAMILY

Uncle Cesar, Mommy, Grandpa, and auntie Mayra with baby Mila in her stomach.

FROM THE FAMILY

Mommy and Daddy @ Mayahs gender reveal.

Biography

On Sweetest Day of 2017 I found out we were expecting our very own miracle. Our very first baby! I was shocked at first then very nervous and yet so excited. I was going to be a mother for the first time! When I found out I was with my best friend Milly @ Target and we were both shopping when I decided to take a pregnancy test. I remember it was a rainy evening and I rushed home and on my way home I called my sister who was also expecting a baby to tell her the news! She was so happy for me and we were both so excited to have both of our babies grow up together. I hung up and hurried home to give Alex the best Sweetest Day gift ever. I handed him four pregnancy test in a nice gift bag. As he opened it, my heart was pounding so rapidly I thought it was going to come right out of my chest! Alex was so smiley and ecstatic about becoming a dad for the first time. He hugged me and kissed me then called Phil his best friend to tell him the great news!

Alex and I decided we wanted to wait until I was 3 months along to tell our families together. After all it was our first time pregnant and we just wanted to be precautions about it. On Christmas Eve of 2017 we gave the news to his family and they were so thrilled. We celebrated in family. Alex and I felt so grateful to have such a wonderful and supportive family. Alex and I were attending ob/gyn appointments to make sure baby was healthy, growing and had a strong heartbeat.

At around 25 weeks I was sent to a specialist ultrasound tech which was basically a routinely and more thorough scan of the baby's anatomy scan. I remember my mother accompanied me to the appointment because Alex had a mandatory day at work that day. The scan took longer than I expected and I was feeling strange. I felt like something was off. I kept looking at my baby's heart and I remember comparing it to my sisters baby's heart and something was different but of course how could I know I was being paranoid on top of that I was a first time mom and my mother instincts were already starting to kick in. But I also remember turning to look at the ultrasound tech and I read confusion but most of all worry in her face. She excused herself and said she was going to get the doctor. The doctor walked in and scanned my baby for what felt like a long time. Sure enough what I was feeling meant something was wrong. That day the doctor told me my baby had a whole in her heart and it seemed like she was missing her diaphragm and her organs were rearranged in the wrong place. My whole world came crashing down and I was angry and felt so helpless I cried to my mother in the hallway and I prayed that they were wrong. i called my dad to tell him what the doctor had told me and he cried with me and told me that he was sorry and that he wish he could do anything to take my pain away and have my baby be fine. That night I went home and I waited until Alex got home from work. I told him what the doctor had told me and that we had to go see a cardiologist so they can give us a diagnostic. We both sat in the dining room quiet and alone in our thoughts. We cried and just waited until we got to see the cardiologist.

After a month we got to see the cardiologist and she scanned me for what seemed like forever and finally she explained to us what was wrong with our baby girl. Our baby girl Mayah had multiple congenital defects along with heterotaxy and dextrocardia. Heterotaxy has to do with the organs rearranged differently then their supposed to be and dextrocardia had to do with the heart being on the right side of the body. Mayah was so unique do to her form of organ arrangements and her heart. After that they asked if we wanted to terminate the pregnancy and of course we declined. We loved our child very much and were going to let her come into this world for as long as God wanted her to live. During the rest of my pregnancy I had to see a fetal echocardiogram specialist along with the cardiologist. Each time I met up with them they said something slightly different but Mayah would need at least one or so surgeries throughout her life to survive. Towards the end one of the specialist gave me a 30% of survival for our baby girl and I just hoped and prayed to God that he would make a miracle.

I took every day one day at a time. I still had a baby shower although I didn't want one. Some days were just too hard to get through but thankfully I had God by my side along with my daughter Mayah growing inside me, Alex and my family to push me to get through another day. On Monday June 18th @ 39 weeks I was induced and on Wednesday June 20th, 2018 @ 3:55 a.m. Mayah made her grand entrance into this world. Weighing 7LB 15oz. She was beautiful as can be! I was in total shock and deeply in love. I wanted to hold her forever and never let her go but I only got to hold her for literally 20 secs, kissed her a few times, took a few pictures and then off to NICU were she was going to be for what ever time.

It turned out to be more serious then everyone thought. Mayah had to be taken to Christ Advocate Childrens Hospital in Oak Lawn, IL for an emergency OHS to be able to survive. I remember be taken on a wheel chair, pushed by my sister in law Olivia to go see Mayah in the NICU of Rush Hospital. I felt so weak and scared. I wanted to cry but I had no strength all I wanted was Mayah to survive. I said my "until next time baby girl". I kissed her and I kissed Alex I saw her being transported into the back of an ambulance and Alex taking the passenger seat of and ambulance and my heart sinked. I saw the sadness and hopelessness in Alex's face and I wish i could take all of our pain away and hope that Mayah would pull through. Alex had to do it all alone for the first night and the couple days until I was discharged from Rush Hospital all because I needed a blood transfusion.

On June 21st at 7a.m. Mayah was taken in for her 1st emergency OHS that last for 3 1/2 hrs. The surgeons were Dr. Ilbawi and Dr. El-zein along with Dr. Van Bergen. The surgery was a success but because Mayahs heart was so sick and because the surgery took a toll on her body she had to be placed on the ECMO machine. The ECMO machine consisted of an artificial live support machine that functioned like her heart and lungs while her organs rested. Mayah remained on the ECMO machine for 2-3 weeks then was taken off of it and was doing work of her own. Mayah's recovery was long and worth it. She fought each day so mighty and strong. She proved every day that she wanted to stay with us. Towards the end of August she had already had two OHS and was thriving like a normal baby. She was doing physical, speech and occupational therapy. We snuggled and loved her as much as we could. She needed to upgrade her oxygen cannula and gain weight. We were mentioning going home already when on September 9th things took a turn for the worse. Mayah caught a cold in the hospital that took a toll of her and she need to be intubated and placed on ECMO emergency wise. That night Alex and I almost lost her. We started from square one. Mayah suffered a mild stroke to the brain do to clotting in her body because of the ECMO machine. Mayah also witness epileptic seizures and lost movement on her right side of her body.

Mayah was on the ECMO machine for 3 weeks. Mayah pulled through like the strong fighter and baby she was. Those were the toughest weeks of our lives. Mayah was able to slowly recover but throughout that time she was struggling with her saturations and was intubated and couldn't come off the breathing ventilator. There was more than a couple of times where Mayah had episodes of her saturations drastically dropping to the point where she was put on this medication that would completely paralyze her and that was the only way her saturations would start going back up and remained above the minimum number. Before making our way to the parent conference that afternoon with my parents and Alex. I noticed Mayah wasn't acting like herself that morning. She looked so tired and was sleeping at an unusual time. I kissed her before leaving the room and she barley managed to open her eyes to look at me. My heart sank. That afternoon we received the unfortunate news that there wasn't much more they could do for our baby girl. Mayah was going to die. We were devastated and heart broken.The doctors knew it was just a matter of time until Mayah would grow tired and would make her way to her eternal place in heaven peacefully. But Alex and I as her parents didn't want to face the reality and were very much still hopeful that our WARRIOR Mayah would fight and come through once again. After the meeting Alex went to the RMH across the street. Alex had gotten a room that first night Mayah was transferred to Christ Advocate Childrens Hospital. Ever since I lived there for almost 5 months of my life with my mother, while Alex took care of the house and worked to provide for us.

My parents hung out with me until my dad called it a day and was getting ready to go home. Alex came a little while later as I walked back into Mayahs room. I remembered telling Alex "Oh you're back?" We exchanged some words. When I noticed Mayah's sats were dropping including her HR. I called one of the nurses Sherine who happened to pass by to get our nurse Diane. Diane then told her go get Andrew who was the cardiologist on that week. Then everyone rushed into Mayahs room with medicines and the CPR cart. The doctor explained to us that Mayahs time was here and that he was going to do everything he could to try to bring her back but if the medicine didn't work that we would just get to hold her until she no longer was with us. Unfortunately Mayah wasn't responding to the medication anymore and on Tuesday November 13, 2018 around 7ish, Mayah took her last breath and gained her wings. After 142.7474 days in the intensive care PSHU Mayah lost her battle to CHD. We will always remember her as the FIESTY, LOVING, STRONG,SWEET WARRIOR. She will live in the HEARTS of her parents and loved ones FOREVER and her cousins Mila and Darek will learn about her strong battle against CHD. WE ARE CHD AWARE.