Sophia Grace Ramsey

April 20, 2019May 15, 2020

Sophia Grace Ramsey passed away in the loving care of her Mom and Dad on Friday, May 15, 2020. She now rests peacefully in Heaven, playing pain-free among angels.

Sophia brightened the world when she was born on April 20, 2019. The beauty in her soul was visible to all who met her, and who were lucky enough to look into her deep, beautiful eyes. Sophia was diagnosed with a rare terminal illness, the severe subset of Junctional Epidermolysis Bullosa, shortly after she was born. Despite her diagnosis, Sophia felt infinitely more joy, peace and love in her life than she did pain. The love that was poured onto Sophia was endless. Sophia felt immense love from her mom and dad who cared for her wholeheartedly and adored her endlessly; her grandparents who spoiled her with snuggles, giggles, and the most tender care; her aunts who took it upon themselves to help with her complex care all while showering her with constant affection; and her uncle who made her light up whenever she saw him. Sophia’s outpouring of love and joy was so apparent, too, as her smile would brighten any moment, and the sparkle in her eyes was so very special. Even in her most tired moments, her peaceful gaze or outstretched hand would display the purest form of love and joy.

Sophia’s strength, bravery, and joyful spirit was and continues to be an inspiration to so many people, as her journey with her illness has been shared and supported around the world. She had the most loving doctors, nurses, researchers and therapists who worked tirelessly to give her the best and fullest life possible. Because of them, Sophia was able to play, smile, laugh, and enjoy the silly moments in life. For this, her family is eternally grateful.

Sophia continues to be cherished forevermore by her Mom and Dad, Katie and Tim Ramsey; her Grandma and Grandpa, Sharyn and Bill Weidlein; her Grandma, Barbara Ramsey; her Grandpa, Donald Ramsey; her Aunts, Sarah and Emily Weidlein; her uncle, Brian Ramsey; her Great Grandmother, Marion Ramsey; as well as by her loving extended family, friends, neighbors, doctors, nurses, therapists, researchers and caring supporters from all over the world.

Sophia is welcomed into Heaven by her Great Grandparents, Alice and John Kyne, Elizabeth and Robert Weidlein, Libbet Weidlein, Connie and Fred Spatola, and Betsy and Robert Ramsey; her Great Uncle Dick Ramsey; and her Great Uncle, Alan Carney. Sophia is also welcomed joyfully to Heaven’s playground by the precious babies from around the world who felt the suffering of EB, who are now rejoicing with Sophia in the comforts of Heaven.

Sophia gave her family a lifetime of love and joy in a short amount of time. She will be held lovingly forever in their hearts.

In lieu of flowers, we ask that you please make a donation to the EB Research Partnership in Sophia’s memory. It is essential that a cure is found for this truly devastating disease. In Sophia’s memory, we will not stop fighting until we can ensure no more babies will suffer. Please go to or mail a check payable to EB Research Partnership to the address: EB Research Partnership, 132 E 43rd St., Ste 432, New York, NY 10017. We are so grateful for your continued prayers and love for our baby girl.


  • Funeral Services Will Be Privately Held


Sophia Grace Ramsey

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Sarah Weidlein

May 22, 2020

Sweetest Sophia, this is my happiest memory. I remember every single thing about this moment, the very first time I held you in my arms. Yours was the most gorgeous little face my eyes had ever seen. So tiny, so perfect. You looked up at me, my heart melted completely. I knew I would love you forever.

Being your Auntie has truly brought me a whole lifetime's worth of joy and happiness. Playing kicky feet and making goofy faces and smiling big smiles and singing your special Sophie Song. Late nights rocking you in my arms, and making up silly rhymes to lull you back to sleep when I ran out of lullabies to sing. Telling you, every chance I got, "I like your sweetest smile, like your cutest nose (boop!) I like everything about you, from your prettiest pretty eyes, all the way to your littlest little toes." So many precious moments I will cherish endlessly, until that cheerful day when we can be together again.

Auntie Sarah loves you so much, Sophia Grace. With all my heart, forever and always 💕

Emily Weidlein

May 21, 2020

Sophia, there are so many special moments you gave me that I will forever hold in my heart. Your smile, your laugh, and your twirling feet brought me endless joy. Your love for music gave me an entire list of new songs to memorize. Thank you for smiling at my very loose interpretation of 'Gaston' and 'Be Our Guest,' every silly performance was always worth it if it was for you. Although I am brokenhearted that these moments together are now only memories, I count myself as incredibly lucky to have been able to experience them with you. I feel peace knowing that now you are in a place where you are free from pain, laughing and playing with all the other children who were taken too soon. I love you so much beautiful girl and I can't wait until the day we can smile together again.
Love Always,
Your Auntie Emily

Marilyn Spatola

May 21, 2020

Beautiful baby girl... oh how I have longed to meet you! Your smile and sparkle has made me so happy from afar in many moments, and I have truly loved hearing your mom, aunties, and grandparents talk of your milestones, strength, and sweetness. I have pain in my heart that your time here was filled with so many challenges, but I also have so much awe in knowing that your beautiful family was exactly the family that could rise to those challenges and bring you everything in their power to guide you through your journey. You are a precious angel now, Sophia, and I know that you are smiling at them right now. Please shine your love down to us in amazing ways. I truly look forward to meeting you one special day, and I can only hope that I can make you giggle and smile too. With lots of love... your cousin, Marilyn

Donald Ramsey

May 21, 2020

When we looked into Sophia's sparkling eyes, we saw everything heavenly. Everyone say's her eyes were so incredibly beautiful! Her grandmother Barbara could make her sparkle even during the most challenging daily bandage routines. I was elated that I could make her laugh with silly noises. How we love that child and will always miss her until we reunite in the eternal place her eyes so revealed to us...

Karen Berning

May 20, 2020

So sorry of the passing of Sophia Grace Ramsey. I never got to me your precious angel. My granddaughter Natasha passed in 2017 of EB. The girls are precious Butterfly Angels flying high with no bandages and pain. Your family are in my thoughts and prayers. Bless you all.

Grandma Sharyn Weidlein

May 20, 2020

A picture is worth a thousand words... love is forever...
God blessed us with Sophia and I am so grateful for the special times we had together. I will cherish you always, Sophia, my beautiful granddaughter.
I love you.

William Weidlein

May 20, 2020

Grandpa Bill Weidlein

May 20, 2020

I remember exactly the moment this picture was taken as Sophia looked into my eyes with her gaze of unending love and joy. It will live in my heart forever! 💕 She radiated this same essence of beauty to all who cared for her throughout her all too short life; a genuine beauty from from both inside and out. I am so grateful to Katie and Tim for sharing the gift of their most precious daughter so generously with us and allowing us to do whatever we could to provide little Sophie with comfort and love. I treasure every moment I spent with her, from the big smiles and laughs during playtime and story time, to joyful family holiday dinners, to peaceful walks at Wolfe park, and most of all to gazing into her eyes while feeding her bedtime bottle and watching her gently, peacefully drift off to sleep. I know beyond words that Sophia is so much happier now and experiencing unending joy in Heaven! I am thankful for the exceptional love shown by her Grandma Sharyn, and her devoted Aunts, Sarah and Emily who would do, and did do, everything possible to bring Sophia comfort; and to all her other caregivers from within and outside the family. And I am eternally grateful to Tim for sharing the love of his life with us and, most of all, to Katie, whose selfless love and unending devotion to Sophia is the greatest gift any of us could have ever given her. Sophia, I will love you forever and keep you in my heart until we meet again. With unending love, Grandpa

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